Associate Director, US Patient Advocacy

At argenx, we are committed to putting the patient first. As a member of the US Patient Advocacy Team, you will play a key role within the broader argenx ecosystem in integrating the patient voice early and often into everything we do to better serve patients and their communities. 

This person will be responsible for acting as the primary point of contact for our external Patient Advocacy Organization (PAO) partners as well as our internal argenx teams to ensure we show up consistently as their partner of choice. 

To be successful, this person will need to set and maintain an indication-level Advocacy strategy, communicate the strategy to internal/external partners, bring the patient voice into development milestones (e.g., end point selection, etc.), and partner with our cross-functional teams to show up for our patient communities for in-market indications during the moments that matter. 

This is a remote-based position. To help meet the needs of the patient communities we serve, you will spend meaningful time in the geographies you cover, building relationships with PAOs and attending prioritized patient events either live or virtually as appropriate. At times, these events may take place outside of standard business hours, a flexible schedule will be developed to accommodate evening and weekend work. 

Key Responsibilities Include: 

Patient Advocacy Organization + External Engagement Responsibilities 

• Develop and implement patient advocacy strategies and engagement plans for disease therapeutic areas, ensuring alignment with corporate objectives and strategies. 

• Effectively balance and prioritize both pipeline indications and in market indications (i.e. gMG and CIDP). 

• Execute patient advocacy engagement strategy Nationally and/or in local geographies that are aligned with cross-functional teams for in-market indications, translating US and market strategies to actionable tactics & events 

• Build and manage relationships with US PAOs 

• Build understanding of patient needs through interactive engagement such as prioritized patient events, patient panels, and cross-functionally identified opportunities, etc. 

• Provide local support to patient services team during the patient onboarding process 

• Represent argenx externally at events & conferences to educate and engage with patients, empowering other teams to do so when necessary 

• Define and measure business impact at local, regional, and national events 

• Build and maintain proficiency in the disease state, Patient Experience, and product knowledge to support the needs of the community 
   

Internal Engagement and Cross Functional Responsibilities 

• Inform local market engagement by generating and synthesizing insights for teams 

• Work cross-functionally within the ecosystem of support at argenx to identify the needs and opportunities relevant to patient advocacy 

• Be a voice for the community within the organization and within the Advocacy team based on assigned pipeline & all in-market indications 

• Effectively manage internal operations, including compliant management of events, patient advocacy organization sponsorships, and budgeting process. 

• Build and own the Advocacy strategy for assigned indications from development through in-market in collaboration with your TA-level Advocacy colleagues 

• Ensure alignment of activities and prioritization to strategy through frameworks, standardization, and ways of working 

Requirements:  

• Bachelor’s Degree required 

• 10 years industry or related experience 

• Proven capability and success implementing innovative programs within rare disease and with minority and underserved patient communities 

• Proven track record setting and maintaining adherence to an Advocacy strategy for a given indication or Therapeutic Area 

• Veeva experience and proficiency required 

• Experience with rare disease patient interactions and compliance required 

• Willing to travel up to 50% of the time and attend events outside of business hours (e.g., weekends and evenings). Flexible schedule will be developed to accommodate evening and weekend work. 

Skills, Knowledge & Abilities: 

• Passion for understanding and championing the needs of people living with rare diseases, their caregivers, and their community, resulting in elevated Patient Experience 

• Strong communication skills with the ability to listen actively, express ideas fluently and succinctly both in person and in writing, and present effectively; especially important to understand the perspectives of and work collaboratively with other argenx internal stakeholders 

• Desire to integrate the patient voice into the end-to-end product lifecycle at argenx and the knowledge to know when, where, and how to do so 

• Preferences: Advanced Degree