Head of Patient Affairs and Engagement

Join us as we transform immunology and deliver medicines that help autoimmune patients get their lives back. argenx is preparing for multi-dimensional expansion to reach more patients through a rich pipeline of differentiated assets, led by VYVGART, our first-in-class neonatal Fc receptor blocker approved for the treatment of gMG, and with the potential to treat patients across dozens of severe autoimmune diseases.

We are building a new kind of biotech company, one that maintains its roots as a science-based start-up and pushes our commitment to innovate across all corners of our business. We strive to inspire and grow our company, our partnerships, our science, and our people, because when we do, we deliver more for patients. 

The Head of Patient Affairs and Engagement is responsible for shaping how patient perspectives influence decisions across argenx and for building patient experience into a defining strength of how we operate as a company. 

This leader will build and lead STEP (Strategy Team for the Experience of the Patient), a global cross-functional community that brings together colleagues across development, clinical operations, medical affairs, patient advocacy, commercial, market access, corporate affairs and regional teams to advance a more connected, intentional and impactful experience for patients. 

This is a builder role. The foundations have been established through STEP. The next chapter is to create the vision, strategy, capabilities and ways of working that will help argenx remain deeply connected to patients as we continue to grow. Success will require bringing people together around shared priorities, translating insight into action, and creating approaches that can scale across teams, geographies and stages of the lifecycle. 

Rather than owning all patient-facing activities, the Head of Patient Affairs and Engagement serves as a connector, catalyst and strategic thought partner, helping ensure patient perspectives become a trusted and consistent input into the decisions that matter most. 

As part of Corporate Affairs, this leader will also partner with colleagues across the company to strengthen how argenx listens, learns and responds to the communities we serve. Over time, they will help shape a broader view of stakeholder experience across argenx, working with Corporate Affairs leaders to connect insights and experiences across patients, healthcare professionals, policymakers, employees and other stakeholders. This direction aligns with the broader vision of experience as a company capability that connects insight, decision-making and stakeholder impact. 

Roles and Responsibilities:

Lead the Global Patient Experience Community 

• Lead and evolve STEP, building a capability that brings structure to patient experience across argenx and helps translate patient insight into meaningful action. 

• Bring together expertise from across functions, geographies and stages of the lifecycle to align around shared priorities and drive meaningful action. 

• Create the governance, focus and ways of working needed for STEP to translate ideas into impact. 

• Help define where STEP can uniquely connect, catalyze and deliver, while enabling teams closest to patients to lead execution. 

Shape the Future of Patient Experience at argenx 

• Define and champion a vision for patient experience that positions patients as partners in innovation, decision-making and impact. 

• Build the strategies, capabilities and approaches that help patient perspectives consistently shape how argenx operates and grows. 

• Identify the opportunities where patient insight can most meaningfully influence decisions, experiences and outcomes across the lifecycle. 

• Connect insights across teams and geographies, ensuring they are translated into action and meaningful change. 

• Partner with Corporate Affairs leaders to help shape a broader view of stakeholder experience and how argenx shows up to the communities we serve. 

Elevate Patient Insight and Influence 

• Build a consistent approach to capturing, synthesizing and activating patient insights across argenx. 

• Ensure patient perspectives are integrated into key decisions across development, clinical operations, commercial strategy and corporate affairs. 

• Create forums, tools and mechanisms that make patient insight accessible, actionable and connected to decision-making. 

• Define how patient influence and impact are measured across the organization. 

Advance Trusted Patient Partnerships 

• Shape a global approach to patient engagement grounded in trust, transparency and long-term partnership. 

• Build relationships with patient leaders, advocacy organizations and rare disease communities around the world. 

• Identify opportunities to work alongside patients and communities to advance shared goals and improve outcomes. 

• Partner with Policy and Government Relations on initiatives where patient voices can help shape broader system change. 

Accelerate Patient-Centered Development 

• Partner with development and clinical operations leaders to strengthen how patient perspectives inform study design, recruitment and trial experience. 

• Help identify scalable approaches that improve enrollment and reduce barriers to participation. 

• Bring together cross-functional teams around priority opportunities where patient experience can accelerate development outcomes. 

Shape How argenx Shows Up for Patients 

• Partner across Corporate Affairs to ensure patient perspectives inform how argenx communicates, engages and builds trust. 

• Bring authentic patient insights and experiences into company narratives, stakeholder engagement and reputation-building efforts. 

• Help ensure the argenx Way is reflected in how we partner with and show up for patients around the world. 

Measure and Demonstrate Impact 

• Establish meaningful measures that demonstrate the impact of patient experience on decisions, outcomes and ways of working. 

• Build accountability for patient-centered outcomes across STEP priorities and initiatives. 

• Help create a culture where success is measured not only by engagement, but by the difference patient perspectives make in how argenx operates. 

Education, Experience and Qualifications:

• 15+ years of experience in patient experience, patient engagement, patient advocacy, healthcare strategy, medical affairs, clinical development, corporate affairs, or related disciplines. 

• Deep understanding of the biotech industry and the patient journey, ideally with experience in rare disease or other complex healthcare environments. 

• Demonstrated success defining and leading global patient experience or patient engagement strategies across functions, geographies, and stages of the product lifecycle. 

• Proven ability to translate patient perspectives and insights into meaningful business, development, clinical, commercial, and organizational decisions. 

• Experience building and leading cross-functional communities, governance models, or enterprise-wide capabilities that turn strategy into measurable action. 

• Established credibility and experience partnering with patient leaders, advocacy organizations, and patient communities to build trusted, transparent, and long-term relationships. 

• Strong understanding of patient-centered drug development, including opportunities to influence study design, recruitment, enrollment, and the clinical trial experience. 

• Experience partnering with senior leaders and serving as a strategic advisor on patient experience, stakeholder engagement, and organizational priorities. 

• Demonstrated ability to influence across teams without direct authority, align diverse stakeholders, and create momentum around shared priorities. 

• Exceptional communication, facilitation, relationship-building, and storytelling skills. 

• Ability to thrive in a fast-paced, global, and evolving environment with a builder mindset, strong judgment, and bias for action. 

#LI-Remote

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For applicants in the United States: The annual base salary hiring range for this position is $228,000.00 - $313,500.00 USD. This range reflects our good faith estimate at the time of posting. Individual compensation is determined using objective, inclusive, and job-related criteria such as relevant experience, skills, demonstrated competencies and internal equity. This means actual pay may differ from the posted range when justified by these factors. Because market conditions evolve, pay ranges are reviewed regularly and may be adjusted to remain aligned with external benchmarks.

This job is eligible to participate in our short-term and long-term incentive programs, subject to the terms and conditions of those plans and applicable policies. It also includes a comprehensive benefits package, including but not limited to retirement savings plans, health benefits and other benefits subject to the terms of the applicable plans and program guidelines.

At argenx, all applicants are welcomed in an inclusive environment. They will receive equal consideration for employment without discrimination on the basis of race, color, religion, sex, sexual orientation, gender identity, national origin, protected veteran status, disability, or any other applicable legally protected characteristics. argenx is proud to be an equal opportunity employer.

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